Research4Me Race to Research Newsletter May-Jun18

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2. A Facebook Group as the place for questions, sharing ideas and experiences, and connecting with others around medical research. We know not everyone uses Facebook, but it seems many people prefer this platform to connect, so we will see how it goes. For the moment the group is called Research Gamechangers, although we are open to better suggestions. Feel free to add your two cents worth regarding the name by joining the group and adding your thoughts to the relevant discussion post. We're pleased to see the level of engagement happening already in this group, and look forward to this continuing to blossom.

Internationally, May is the month alot of events are run to raise awareness of clinical trials. While that is great, we'd like to see that effort continue throughout the year. So for #clinicaltrialsday this year, we launched the #TrialsTues hashtag, and every Tuesday we will share on our social media platforms articles that explain clinical research or stories of participation to help further demystify clinical trials.

We hope this will catch on and encourage others to do the same. Please share these so we can help educate the community, and let us know if you have own stories to share.

Read more about this initiative.

Not all trials are for people without options, or for testing new drugs. To demonstrate the diversity of clinical trials looking for volunteers, here are 5 trials listed on the ANZCTR that recently began recruiting in Australia:

Atrial Fibrillation Screen, Management And Guideline Recommended Therapy (AF SMART): Implementation in the rural primary care setting This diagnostic trial will be looking for 3000 patients aged 65 years or older attending one of 10 GP practices in rural NSW
A Multicentre, Randomised, Controlled, Observer-Blind Study to Evaluate Safety and Duration in Stomach of Modified Release Prototype Capsules in Healthy Adults This is a study looking for 40 healthy 18-40year olds running in Adelaide to find out how long modified release prototype capsule formulations stay in the stomach, and the safety of several modified release capsule formulations and a placebo
A double blind randomised controlled trial assessing the effect of oral ibuprofen on outcome of flexor tendon repairs This study at Gold Coast and Robina hospitals is looking for 66 people aged 18years or older undergoing repair with acute (less than 14 days) sharp laceration to single or multiple fingers flexor tendon injury to assess the effect of using oral ibuprofen after repair of hand flexor tendons on function and final outcome of hand.
The cannabidiol youth anxiety pilot study (CAPS): a 12-week open- label pilot study of the safety, tolerability and efficacy of cannabidiol for anxiety disorders This study in Melbourne is looking for 30 patients aged 12-25 (inclusive) who do not respond to current treatments for anxiety disorders
The Active Breed pilot randomised controlled trial: a weight loss and lifestyle modification program for men in South-Western Sydney. This trial is looking for 50men aged 35-64 to attend weekly education and physical activity sessions for 12 weeks at the Canterbury-Bankstown Bulldogs Rugby League club home stadium.

Research4Me has no relationship with any of these trials. If you are interested in more information, please click the links and contact the investigators listed directly.

We thought you might find some of these recent articles of interest:

What you need to know about accessing trials outside your province in Canada. We've included this because, although it is Canadian, it is a patient talking about the effort they had to go to access the trials they found. In Australia, you usually don't have to be in the same city if you are prepared to travel to appointments. Always contact the trial site and ask if they accept people travelling, and whether there is any financial support to do so. It won't be available for every trial, but some trials do have that funding. And if you need help finding trials, contact us.
Did you know there are also clinical trials and research done for our furry friends? Here's an example: UQ Vet helps pets with cancer. Maybe ask your own vet next time you visit.

An Interview on ABC Radio National speaking with 3 people in Adelaide who have participated in cancer clinical trials about the experience, and some contextual information from Prof In Olver.
In June 2018, NHMRC, the Australia Research Council and Universities Australia issued the updataed Australian Code for the Responsible Conduct of Research, 2018 (the 2018 Code). As this is one of the overarching guidance documents researchers in Australia should adhere to, we thought you might be interested to take a look.
Going further to make all clinical trials public. This is a blog post talking about the UK's Medical Research Council and other international efforts to increase registration and reporting of clinical trials. Anecdotally, our own ANZ clinical trial registry (ANZCTR) also supports the AllTrials campaign, and have said through personal communications that a reporting facility will hopefully be available on the ANZ CTR by the end of the year. Learn more about the register's plans in our Thinktank report to be released soon.

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