Just a quick note from me this week. Stay tuned through our socials for an announcement of the opening of expressions of interest for travel support for consumers to an upcoming clinical trials sector conference. I am just finalising details so they are not quote ready for this newsletter, but it won't be long.
It was great to see the NHMRC announce that all publications of its publicly funded research are to be made freely available and accessible. This is a huge win
for consumers who will now be able to access the research that they may have participated in or contributed to, or which they want to read to help inform their own care.
It was also interesting to see the Seventy-fifth World Health Assembly approved a new resolution (WHA75.8) on 'Strengthening clinical trials to provide high-quality evidence on health interventions and to improve research quality and coordination'. It's a challenging read, but does highlight the benefits of clinical trials, the value of trial participants and the need for the potential beneficiaries of research to be involved in the conduct of trials (not just as participants). It's a call to action globally to improve clinical trials systems, especially to enable rapid research around emerging health issues such as was necessary for the COVID
pandemic.
This is a list of all studies on theANZCTR approved by a human research ethics committee, recruiting in Australia, with a trial start date between 13-26 Sep 2022 not previously listed here, as at 26 Sep 2022.
We provide the above trial listings as a free service to help people know what studies have recently started that they or someone they know could have an interest in. Please contact researchers directly through the listings as we have no connection/involvement with these studies.
If you are a researcher that wants to let people know about your recruiting trial here, please contact us (first listing free, subsequent listings for a fee).
We love to hear your stories as trial participants, consumers involved in research or the carers and family that help support people do either. It helps us promote your good works, uncover areas for improvement, and inspire others as to what is possible.
Feel free to email us, give us a call, or share your story in any other way you'd like to with us.
The following are some upcoming activities that that we have seen that people may be interested in:
The Cooperative Trials Group for Neuro-Oncology are holding a Patient Education and Information Forum as part of their Annual Scientific Meeting in Brisbane, on 16th October. It's free, and tickets are available here.
The Australian Clinical Trials Alliance is holding an online event called 'Exploring Technologies to Improve Recruitment Workshop' on Fri 21st Oct 2022, 2:00 pm - 4:30 pm AEDT. It's free, and consumers are welcome to attend. Register online.
Monash Partners and Sydney Health Partners will be hosting a free online webinar "Consumer and Community Involvement (CCI) in clinical trials: exploring the nitty gritty of consumer advisory
panels" onTuesday 25 October, 11am to 12.30pm AEDT online. I happen to be one of the speakers. If you are interested in attending, please register online.
Monash Partners is holding a free webinar 22 Nov 22, 10am where a panel of clinicians, researchers, health service leaders, researchers and consumer representatives will answer your questions on the successes and challenges of integrating community and consumer involvement into practice. Register online.
Researchers at the University of Sydney are looking to improve carer involvement in cancer consultations with eTRIO, a new online learning program.People living with cancer and their family carers are invited to provide feedback on the free training and help evaluate its effectiveness. Upon completion,
participants will go into the draw to win one of three Woolworths gift cards. If you would like to contribute to this important research, please visit https://buff.ly/3Bp1ag7 or email sarah.giunta@sydney.edu.au or rebekah.laidsaar-powell@sydney.edu.au to find out more.
If you'd like to proactively advertise a consumer involvement opportunity or event, then please get in touch for more information.
Check out AccessCR's clinical trials jargon buster and other resource available on our website's Knowledge page if you are looking for information and support around clinical trials basics, getting involved and asking your doctor about trials.
Have you taken part in or cared for someone in a trial or are a consumer involved in research (ie are part of the CCReW)? Or, would you like to help support the CCReW?
Feel free to contact us anytime at CCReW@AccessCR.com.au. Please share this newsletter with people that might have an interest in taking part in or sharing their experience with researchers to improve trials.
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If you have questions, want to discuss research participation or involvement issues, or have resources and involvement opportunities to share in between newsletters, feel free to jump into our Facebook Group, and email.
