Latest Australian trials and research involvement news/opportunities.
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AccessCR-CCReW News and Opportunities 8Nov2022
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Sometimes things don't quite go to plan. Today I was supposed to be at the Australian Clinical Trials Alliance (ACTA) Annual Scientific Meeting (ASM) in Adelaide. But alas, an awkward twist on the weekend rendered me unable to travel and meet up with all the Adelaide local and inbound consumers, and our CCReW scholarship holders.  I do hope everyone has a great time and I look forward to hearing about your experiences.

Over the past couple of weeks there's been lots of webinars and activity supporting the movement for greater consumer involvement in research. For example, the Medical Research Future Fund's assessment criteria descriptors to include more explicit expectations for consumer involvement. The Australian Academy of Health and Medical Sciences released a vision statement for integrating research into healthcare which identified consumer and community involvement in research as a key pillar. The MRFF priorities for 2022-24 went live yesterday, with consumer-led research remaining a key priority with a nice rewording about the need to build connections between consumers and researchers.

The Health Translations SA October webinar series exploring consumer involvement in research was a highlight, as were webinars by Monash Partners/Sydney Health partners, and HealthConsumers NSW/Sydney Health Partners. I'd highly recommend catching up on the recordings of all these events.

Next Tuesday, the NHMRC & CHF are launching a consultation to revise the current Statement on Consumer Involvement in Health and Medical Research into a principles-based document. The link to register for the workshop launch is in the events section below. I am one of a few speakers sharing our thoughts, and I'd really like to encourage as many consumers as possible come along to share their perspectives too.

I'd also encourage you to take a look a the WHO consultations listed below that close this Friday 11 Nov, as they are important for improving transparency, accessibility, safety and quality in clinical trials globally. Its a busy time!

Until next time, may the world be kind to you.
                    AccessCR and the CCReW initiative

This is a list of all studies on the ANZCTR approved by a human research ethics committee, recruiting in Australia, with a trial start date between 25Oct-7Nov2022 not previously listed here, as at 7Nov2022.

A researcher asked us to share this trial currently recruiting:

This listing is a free service to help people know what studies have recently started that they or someone they know could have an interest in. Please contact researchers directly through the listings as we have no connection/involvement with these studies. If you do contact a researcher, or enter a trial on the list, please let us know. We would love to know whether these listings are helping people find studies.

If you are a researcher that wants to let people know about your recruiting trial here, please contact us (first listing free, subsequent listings for a fee).

We love to hear your stories as trial participants, consumers involved in research or the carers and family that help support people do either. It helps us promote your good works, uncover areas for improvement, and inspire others as to what is possible. Feel free to catch up on stories already shared on our blog.

Feel free to email us, give us a call, or share your story in any other way you'd like to with us.

The following are some upcoming activities we/ve spotted that may be of interest:
  • Victorian Comprehensive Cancer Centre EOI: Personalised Cancer Care Consumer Reference Group. Help provide advice based on your experience around the value of integrating molecular tests such as genomics into routine cancer care. Applications close 5.00pm, Tuesday 8 November 2022.
  • WHO Open consultation: WHO ICTRP guidance for reporting summary results in clinical trial registries. There is substantial variation in the elements of summary results collected by trial registries. To promote harmonisation, recommendations for the minimum elements of study results that should be reported in trial registries has been drafted. The purpose of this consultation is to solicit feedback from stakeholders - including researchers, patients, journal editors, funders, industry sponsors, and regulators - on key components of this draft guidance. The deadline for submitting feedback is 11 November 2022.
  • WHO Open consultation: WHA 75.8: Strengthening clinical trials to provide high-quality evidence on health interventions and to improve research quality and coordination. The deadline for submitting feedback is 11 November 2022.
  • The National and Health and Medical Research Council (NHMRC) and the Consumers Health Forum of Australia (CHF) are convening a stakeholder consultation workshop to begin the review process of the NHMRC and CHF Statement on Consumer and Community Involvement in Health and Medical Research. The workshop will be held on the 15th November 2023 , 1-4pm (AEST) via MS Teams. Register now through Eventbrite.
  • Health Consumers NSW Showcase ‘Celebrate Connections: Designing the future together’.
    is being held in Sydney Fri 18 Nov, 10am-2pm.. Register online.
  • Monash Partners is holding a free webinar 22 Nov 22, 10am where a panel of clinicians, researchers, health service leaders, researchers and consumer representatives will answer your questions on the successes and challenges of integrating community and consumer involvement into practice. Register online.
  • The NHMRC Research Translation Long Weekend 2022 is a hybrid event, combining in-person events with online events. Thursday 17 November to Tuesday 22 November 2022 (with a weekend break). Sessions will start at 12:00 AEDT (09.00 Perth, 14:00 Auckland) and end by 16:00 AEDT pm each day. Registration is free, but spaces are limited so don't delay.
  • Monash Partners webinar - Learning Health Systems – The why, what, who and how to improve care delivery and quality by 2030. 8Dec 1-2.30pm.

If you'd like to proactively advertise a consumer  research involvement opportunity or event, then please get in touch for more information.

Check out AccessCR's clinical trials jargon buster and other resource available on our website's Knowledge page if you are looking for information and support around clinical trials basics, getting involved and asking your doctor about trials.
Have you taken part in or cared for someone in a trial or are a consumer involved in research (ie are part of the CCReW)?
Or, would you like to help support the CCReW?

Feel free to contact us anytime at Please share this newsletter with people that might have an interest in taking part in or sharing their experience with researchers to improve trials.

If you were forwarded this email and would like to subscribe to receive it each fortnight, click below.

If you have questions, want to discuss research participation or involvement issues, or have resources and involvement opportunities to share in between newsletters, feel free to jump into our Facebook Group, ort email.

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