The latest Australian clinical trials and ways to get involved in research.
 ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌
AccessCR-CCReW News and Opportunities 14Feb2023
View this email in your browser


Happy Valentines Day to all the CCReW, and researchers recruiting and partnering with CCReW. I'm sending you love for all the time, effort and commitment you have to research, and improving people lives for the future.

I had hoped to be announcing the next round of CCReW travel scholarships this week, but alas, it's proving difficult to find scientific conferences in Aus welcoming of health consumers that we haven't previously supported. So if you know of one that is on in the next 3 months that meets our criteria, and covers a therapeutic area of broad interest, please let me know. 

The elephant in the room remains to be the business model for many scientific conferences (ie the need for corporate (pharma) sponsors/trade exhibition) and the requirement to avoid the potential for advertising to consumers. There is a real need to update legislation (or its interpretation) to recognise the difference between 'a patient/person on the street' and an active 'health consumer partner/advocate to research & industry' in the TGA Advertising legislation. I hope we can progress doing something to make this distinction so everyone can reap the benefits that greater partnership and networking between researchers, industry and consumers will bring.

And to that end, if you are involved in coordinating a conference running this financial year, I'd encourage you to check out Belberry's newest round of participant engagement grants currently open to support you to engage consumers in your conference. The deadline for applications is 10 March 2023. Applicants can apply for a minimum amount of $1,000 and up to a maximum of $20,000 (ex GST). Having supported HSRAANZ to win a grant and execute their plans at their conference last year, these grants really are a great opportunity to go above and beyond for your consumer partners.

As always, there are lots of interesting opportunities and resources you might like to check out below. So until we meet again, wishing the world is kind to you.

                                                        Janelle, AccessCR and the CCReW initiative

This is a list of all studies on the ANZCTR approved by a human research ethics committee, recruiting in Australia, with a trial start date between 30Jan - 14Feb23  not previously listed here, as at 14Feb23.

Researcher-requested listing (free)
  • Alternative imaging technique and an automated image processing algorithm for the early detection of rheumatoid vasculitis. The study aims to investigate if the early detection of rheumatoid vasculitis can be enhanced with ultrasound imaging. It is looking for people with rheumatoid arthritis aged 18 years or older able to attend one visit lasting about 40mins (involving questions, surveys and an ultrasound of ankles/feet). For more information, please contact Robyn Boman at or 0421 059 316.

Please contact researchers directly through the listings as we have no connection/involvement with these studies. If you do contact a researcher or join one of these trials please drop us a note so I know whether providing this listing is useful and helping people find trials.

If you are a researcher that wants to tell people about your recruiting trial, please contact us (first listing free, subsequent listings for a fee).

In the next section, we share some free workshops being hosted by Health Care Consumers Association Inc and led by Dr Mary Dahm. A few years ago I interviewed Dr Dahm and some of the consumer partners participating in a project to improve hospital test management. So today, I thought I'd reshare the 3-part blog with their reflections on working together and the value of consumer involvement in research. (If the link is a little slow, its because its on my archived Research4Me website).

We are always looking for stories to share on our blog and socials from trial participants, consumers involved in research or the carers and family that help support people do either, or researcher involving consumers in their work. If you'd like to share yours, please get in touch. And, feel free to catch up with stories already shared on our blog or Facebook Page.

The following are some upcoming opportunities and events spotted that may be of interest:

If you'd like to proactively advertise a consumer research involvement opportunity or event, or would like to engage our help or advice on an activity, then please contact AccessCR.

Here's a few resources (old and new) you might be interested in:

  • NSW Health article on 'Ethics and Governance: the complexities of setting up a human trial'.
  • ExplainPaper - Upload a paper, highlight confusing text, get an explanation. We haven't tried this tool out yet, but it was highlighted to us by a colleague and sounds pretty useful
  • Review article: Using Patient Perspectives to Inform Better Clinical Trial Design and Conduct: Current Trends and Future Directions
  • Review article: A scoping review of methods to measure and evaluate citizen engagement in health research
  • Article: Matching researchers’ needs and patients’ contributions: practical tips for meaningful patient engagement from the field of rheumatology
  • Review article: The experience of patient partners in research: a qualitative systematic review and thematic synthesis
  • ACRP article: Findings from a Long-Term Patient Engagement Model- a standing Global Community Advisory Board (GCAB) for Janssen’s immunology therapeutic area
  • AccessCR's clinical trials jargon buster and Knowledge page for information and support around clinical trials basics, asking your doctor about trials, helping clinicians with information on trials and more. Check out our latest webpage sharing resources for involving consumers in research.

Help us spread the word and get more people involved in research.

Help speed up and improve research by sharing this newsletter with your family, friends and colleagues and letting them know about the research looking for participants and consumer research partners. If there is anything we can do to improve the newsletter, please get in touch.  

If you were forwarded this email and would like to subscribe to receive it each fortnight, click below.

Hear about consumer involvement opportunities, events and resources first, or get involved in conversations about research by joining our private facebook group - Research Gamechangers.

You are receiving this email because you subscribed to our newsletter or database. Unsubscribe

AccessCR Pty Ltd
Level 13, Suite 1A
465 Victoria Ave
Chatswood NEW SOUTH WALES 2067

Email Marketing by ActiveCampaign