Latest news, recently opened Australian trials, and more.
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AccessCR CCReW News and Opportunities 7 Jun 22
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Latest News

It's a couple of weeks now since the ARCS conference (below) where it was great to start talking to consumers and research industry professionals about the CCReW concept and the plans for a trials helpline, clinical trial participant welcome packs, participant experience survey, trial navigators and more.

I also loved meeting the two recipients of the travel support we had been able to raise with the help of Rare Cancers Australia, Medicines Australia, Lucid Health Consulting and TrialDocs. It was heartening to see both really embracing the opportunity - making new connections, talking consumer engagement, and contributing their voice to the discussions. We look forward to giving more CCReW travel support to attend other conferences later this year, so stay tuned for those opportunities.
The collaboration and financial assistance of those providing travel funding is an example of what's needed to realise the ideas for supporting CCReW. I hope more organisations engaged in research will see the value iof investing in support of the CCReW and ultimately improving general trial success. Reach out if you want to help make that happen, as a corporate social responsibility commitment, as a donor or client, or as a collaborator sharing resources. Google 'collective enoughness' - I know we have all we need to succeed if we work together.

Finally, I want to celebrate the small and large CCReW activities and achievements. So please send in your news, pictures or reflections on trial participation or as a consumer partner in research, so I can share it with the rest of the CCReW community. Your stories might just inspire someone else in/into research.
                    AccessCR and the CCReW initiative
Have you ever been asked about your experience participating in research?

Our protoype research participation experience survey is online for anyone that would like to keep a record of their experiences over time. It can be completed at any time, from trying to access a research study, to participating and completing the study, and as often as you like. You will be emailed a copy of your responses to do with as you wish.

Tell us about your experience, so we can identify opportunities for improvement, or centres giving great experiences to partcipants.

This is a list of all studies on the ANZCTR approved by a human research ethics committee, recruiting in Australia, with a trial start date between 23 May - 6 June 2022.

If there are trials you know have just opened, but are not on this list, then it may be because the ANZCTR listing was not up to date at the time of the search, or the trial was not listed as approved, recruiting and with a start date during the search window. If you are interested in more information, please click the links and contact the researchers listed directly. If you have problems contacting the researchers, please let us know. AccessCR has no relationship with any of these projects and conducts this search of the public register to help people know about the research studies looking for participants.

If you'd like to proactively advertise a research study, then get in touch. Your advertising will help us continue this free CCReW support service.

If you're having trouble understanding some of the clinical trials terminology, check out AccessCR's clinical trials jargon buster.

We've also got lots of other clinical trial resources you might find interesting on AccessCR's Knowledge page, like a short Clinical Trials 101 guide for clinicians looking to support their patients around clinical trials, and a checklist of questions people might like to ask the research team when they are considering a trial. .

The following are research activities looking for consumers that we have been made aware of or asked to distribute.

  • A Sydney-based researcher is looking for people with gout who might be interested in being part of a reference group (meeting virtually) for some research she is currently doing about gout and taking medication (medication adherence). The main role is to advise on various aspects of the research. People don't need any medical or research experience. Their lived experience of gout is what is required. If interested, please contact Dr Ayano Kelly
  • The Health Consumer NSW June newsletter has a number of consumer involvement opportunities advertised.

If you'd like to proactively advertise a research involvement opportunity, then get in touch for more information.

The following are upcoming research/trial-related events we and others may be running where consumers are welcomed.
  • The Australian Commission on Safety and Quality in Healthcare a running 3 public consultation workshops during June for phase 2 of their work toward a National One Stop Shop for Clinical Trials. Click here for more information on the One Stop Shop project and to register for the public consultations.
  • Our next Research Gamechangers online group meetup is on 20th June at 8.30pm AEST. Join the group for more information.

Let us know if you'd like to proactively advertise an upcoming research-related event where consumers are welcomed.

Do you identify as a member of the CCReW,
or would you like to discuss how you can help support CCReW?

Feel free to contact us anytime at Please share this newsletter with people that might have an interest in taking part in or sharing their experience with researchers to improve trials.

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